Thursday, 21 January 2010
Today I have been in the bedroom all the time. The spinal cord compression is completing now. The legs are complete dead weights and I can't stand anymore. It's making it extremely difficult to transfer from the bed to the commode which is right next to the bed! So going down the stairs is just unmanagable. The stair lift should be being fitted tomorrow afternoon so hopefully I'll have a change of scenery from tomorrow sometime! At least I've had the laptop upstairs with me! But actually it's been quite busy with physios, OT's, hospice nurse and finally district nurses who have fitted a catheter and what a relief that is! It's been tiring trying to get to grips with some of the new equipment so now I won't feel like I need to transfer to the commode quite so much. I've already drained 2 litres in the last hour! Sorry - this might be a bit too much clinical information for some of you! Had a bit of a low when the Marsden say they don't want to give me any more chemo because they think it won't work, but we'll see how I am next week and contest their decision!